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2020 TASH Conference - Virtual Edition has ended
Welcome to the 2020 TASH Conference - Virtual Edition website! We’re so glad you are here!

Each year, the TASH Conference brings together individuals with significant disabilities and their allies to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The conference is attended by passionate advocates, leaders, and subject matter experts from every corner of the disability community. Conference attendees play an important role in supporting individuals with significant disabilities to overcome various barriers in order to live their best lives. Central to this work is the premise that individuals reach their optimal potential only when they are given the opportunity to live, work and thrive across the lifespan in the same communities we are all members of. The conference is intentionally designed to support the interests of professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; home and community-based service providers; students, family members, and most importantly, self-advocates with lived experience.

This year, while we are taking the conference virtually due to the COVID-19 pandemic, we believe that our unique approach to providing exceptional first-rate content and building strong community ties and connections across various stakeholders will yield an extraordinary event! We have taken extra steps to bring people closer together during these times, as well as to create an amazing virtual environment that expands our knowledge, spurs our creative thinking, and focuses on healthy living and having fun!  Our conference theme, Feel the Power of Inclusion, reinforces the importance of our continued commitment to promoting a world of equity and opportunity for all, and is predicated on the value of bringing together diverse perspectives and experiences in an effort to build strong human connectivity and spur collective action.

Need technical assistance during the conference? Please email our support staff at helpdesk@tash.org.
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Wednesday, December 2 • 2:30pm - 3:15pm
Power of Inclusion in Data: Roadmap for Health Equity Data for Persons with IDD 2020-2030

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Inclusion in surveys and the census of people with intellectual and developmental disabilities (IDD) is a civil right. Being visible in that data - that is, being identifiable as a distinct group by disability status - is essential in order for needs and inequities to be identified and addressed. The Roadmap for Health Equity Data for Persons with IDD 2020-2030 is a collaborative cross-agency and multi-stakeholder initiative led by the Administration for Community Living. Its vision is to build a robust health surveillance system for people with IDD that is used to inform policies, programs and projections. This presentation will report on progress of the past year in drafting the Roadmap based on multiple-stakeholders' input. Presenters will provide an overview of: 1) the Roadmap process and activities for the coming decade, including IDD identifiers for national health surveillance, 2) leveraging federal, state and private insurer administrative data, and 3) communicating findings.
Presenters
avatar for Tia Nelis

Tia Nelis

Self-Advocate Engagement Coordinator, TASH
avatar for Jennifer Johnson

Jennifer Johnson

Deputy Commissioner, Administration on Disabilities, Administration for Community Living
avatar for Katherine Cargill-Willis

Katherine Cargill-Willis

Program Specialist, Administration on Disabilities, Administration for Community Living, The U.S. Department of Health and Human Services
Katherine Cargill-Willis has been a Program Specialist at the Administration on Disabilities for almost twenty years. During her tenure, she has been a project officer for University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), the... Read More →

Wednesday December 2, 2020 2:30pm - 3:15pm EST
Virtual Platform Online
  Breakout Sessions, Track 2

Attendees (101)